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Old 10-04-2006, 12:51 PM   #1
Jeff Martin
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I have a friend with a condition called polymyositis with scleroderma overlap. They would like to start working out. Anything specific to avoid?
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Old 10-04-2006, 02:18 PM   #2
Jerimiah Childress
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I don't have any experience with this, but with all the resources I have located the biggest thing to watch out for is pulmonary hypertension. Here is a list of things to watch out for with PH

1. Many PAH specialists agree that some form of exercise is not harmful for PAH patients and may be helpful.
2. Patients with PAH should speak with their doctor before beginning any exercise program.
3. Patients with PAH should not over-exercise at any time. In other words, do not exercise to the point where symptoms such as light-headedness, chest pain, or severe shortness of breath develop. To determine how much exercise is reasonable, each patient should talk with his/her PH specialist to develop an individualized exercise plan.
4. Exercise such as light resistance training of small muscle groups (no heavy lifting), and light to moderate aerobic activity (walking, swimming, etc.) are the recommended forms of exercise for PAH patients.
5. Except in those PAH patients with minimal or no symptoms, it is inadvisable to exercise upper and lower limbs at the same time ( for example as with a Nordic track machine).
6. In general, patients with severe limitation of activity, and/or a history of dizziness and/or fainting during exercise should not continue with, or plan to begin, a regular exercise program.
7. A clinic or hospital-based exercise facility to perform regular exercise should be considered when starting an exercise program, but is not required.
8. Outdoor exercise should be avoided during hot or humid weather.

So far the take home message I have gotten from most of the resources and to take it easy, but exercise is critical for fighting the polymyositis. I have an email out to some colleagues and I will post if they have any additional information.
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