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Old 12-16-2007, 10:04 PM   #1
Andrew Cooper
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Daughter with type 1 Diabetes

My duaghter is 7 and was daignois with Type 1 diabetes on the 14th. Looking for others with similar.Help.
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Old 12-17-2007, 06:32 AM   #2
Susie Rosenberg
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Re: Daughter with type 1 Diabetes

Andrew, sorry to hear your family is facing this stress. I don't have a child with diabetes. I do have a child with autism and I remember well the shock and stress of coping with a serious new diagnosis.

All I can tell you is to be patient with yourselves as you learn how life will be different coping with your child's condition. Contact the American Diabetes Association and they can put you in touch with all kinds of resources, including education groups, parent support groups, etc. Start with the ADA website and work from there via your local resources.

I can tell you that overwhelming as it all seems now, one day all that you have to do---blood testing, medications, diet---will be just routine. Life will go on, albeit with some changes. Don't worry too much about the long-term future now. Good control of blood sugars from the start will give your daughter a good long-term outlook. So just concentrate on getting a grip on her care now, and the future will take care of itself.

My son was first diagnosed at age 3. At the time, he was rocking and flapping and his speech was really disordered. Now, he's finishing high school regular classes and getting ready to attend junior college, has friends, and is a really nifty person. We got here just by dealing with what we had to day by day.

The more matter-of-fact you are with your daughter, the more she understands, the more in control she will feel. She will pick up on your emotions. So if you believe this is something you can cope with, she will believe it, too.

Best wishes to all of you...
Susie
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Old 12-17-2007, 09:22 AM   #3
Peter Terry Haas
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Re: Daughter with type 1 Diabetes

Andrew, I'm sorry to hear about your daughter's diagnosis. That being said, with the current state of medical technology your daughter can expect to lead a full, healthy, active life.

My girlfriend has been Type 1 since she was 7. I'll share what I know from being around her and I'll talk to her more about it too.

In general the best things to do are to be proactive and establish a regular schedule.
-check blood sugar frequently. Initially you will be checking it a lot, but as you get used to managing it, the need to check it will decrease.
-if you can swing it, get an insulin pump. My GF has had hers for the last 5 years and it has allowed her much greater control of her sugars.
-be conscious of the carbohydrate content of the foods she consumes. The more carbs, the more insulin she will need (I'm sure that's obvious).
-learn to recognize how extremes in blood sugar manifest themselves physically. Low=excessive sweating (even at rest), psychological changes(confusion, combativeness, irritablity), low energy levels. High=nausea, general crap feeling. You probably saw a lot of these symptoms before you had to take your daughter to the hospital.
-physical activity will affect insulin requirements. My GF eats and shuts her pump off before exercising to avoid dropping low.

Make glucose control your top priority. Maintaining normal levels day to day, and from there good A1Cs will benefit her tremendously on the daily and help to prevent long-term health problems. Get her active and accountable about controlling her sugars as soon as she can.

Hope this helps. Best wishes to you and your family.
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Old 12-17-2007, 12:19 PM   #4
Sarena Kopciel
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Re: Daughter with type 1 Diabetes

Andrew in case you dont know this rule yet--try not to double post in 2 different threads because people will be confused as I was. You are getting answers in both places that are both very good...

Note to moderators--perhaps the 2 posts should be combined thereby rectifying the situation!
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Old 12-17-2007, 02:24 PM   #5
David Aguasca
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Re: Daughter with type 1 Diabetes

peter makes a lot of excellent points....

glucose control above everything else. most of that is checking glucose levels often, and managing insulin dosage appropriately, but diet is super important too. this may be pretty hard considering how young your daughter is, but trying to cut out as much high glycemic food as you can will be better for her in the long run...the only carbs i get are from fruit, veggies, and occasionally i cheat with a cookie or two

also...knowing carbohydrate amounts for every food imaginable is important to know how much you're going to inject. www.calorieking.com (WFS) has been a priceless source of info for this.

the pump is amazing...especially for those that are especially insulin sensitive. my unit:carbohydrate ratio is 1:20g, so dosing with an insulin pen can be very innacurate.

along with the symptoms peter mentioned, lows can sometimes be characterized by getting slight tremors, and if my sugar gets above 140mg/dl i get a headache.
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Old 12-17-2007, 07:22 PM   #6
Dave Matteson
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Re: Daughter with type 1 Diabetes

Many major hospital systems have specific diabetes clinics that are staffed by endocrinologists who are usually phenomenal at not only helping someone recently diagnosed, but also in providing long-term care management. My only suggestion beyond what a diabetes specialist might offer is to get your daughter into a CrossFit Kids ASAP!
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Old 12-17-2007, 09:46 PM   #7
Andrew Cooper
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Re: Daughter with type 1 Diabetes

Thanks to allthat have posted here. It has been a obviously stressful time here. I'm really looking for others that have kids with similar situations. I really appreciate the input. Maybe ill speak to some of you at the Jan. 5-6 Cert. Still planning to attend if all is going well here.
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Old 12-18-2007, 05:49 AM   #8
Steve Reggio
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Re: Daughter with type 1 Diabetes

Andrew,
I am not dealing with your situation, I am in Susie's boat I have a 6 year old with autism. It is difficult to see any type of illness in a child, particularly your own. You wish that somehow you could take it from them so you can deal with it and they won't have to.

On the positive side, I grew up playing baseball with a kid that was Type I and he always had to be aware of his glucose levels but it never held him back at any level. Went on to pitch in college. I currently play hockey with a guy that is Type I and has been since 6 or 7. He is a police officer and has never had any issues during a game. It just takes constant monitoring on his part. So this should not hold your daughter back in any way, she should do everything she wants.

Best of luck to you and best wishes to your daughter!
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Old 12-18-2007, 10:56 AM   #9
Ryan Long
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Re: Daughter with type 1 Diabetes

Andrew,

I have a 3 year old daughter with Type 1 diabetes, celiac disease, and down syndrome. She was diagnosed with type 1 at 16 months old. It hasn't been easy. My wife and I frequently read and post on the website Children with Diabetes, google it. Its been a great resource. Our daughter has been on an insulin pump for the last 6 months, and I agree with the above that the pump is the way to go. You probably have a few months of learning about diabetes first though. Riley uses the Minimed 522 insulin pump and Continuous Glucose Monitor sensor. The CGM checks her blood sugar automatically every 5 minutes and updates it on the pump display. We still use finger sticks though several times a day to calibrate the CGM and to verfiy for correction boluses. I can't remember the name of the hospital there in Colorado but its supposed to be the best diabetes center in the world. PM me if you can't find it.

And I just wanted to make sure that everyone here understands that diet and exercise has nothing to do with the onset of Type 1 Diabetes. Type 1 is an autoimmune disorder. Exercise is always good but is in no way a solution for Andrew's child.

If your daughter is in public school you're going to need to get started on a health care plan to make sure she's safe there. Your daughter is protected by section 504 of the Individuals with Disabilities Education Act and is entitled to certain modifications and protections to enable to her to safely get an education.

PM or email me if you have any questions. Type 1 sucks, but life goes on.

Ryan
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Old 12-18-2007, 02:07 PM   #10
Kurt Kendall
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Re: Daughter with type 1 Diabetes

I am a type I diabetic, and was diagnosed right around the same age as your daughter. I feel I was very lucky because my parents never allowed me to do anything different from what I would have done otherwise. This condition is a big deal, but don't make it a big deal (you know what I mean). My teachers and coaches were always told about my condition and what to do if something happened, but other than that I wasn't treated any different. Keep an eye on her but let her live her life, if you constantly hover over her it will end up effecting her life in just the opposite way you intend. I'm sure at first you will overeact to just about everything, which is understandable, just be very aware of what you are doing.

I don't know if I agree with the pump thing. Although injections seem like an unpleasant proposition, in a years time it will seem very natural to her. I think there is alot of value in being able to understand your body, and since the the pump allows a 'quick fix', sometimes it can be used as a bail out for proper medicine/nutrition. And if she is active, it can and will get in the way.

In the grand scheme of things this isn't bad. I know as a parent right now it seems horrible, but it could be much worse. Medicine is starting to catch up, and she will live a normal life.
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